Ehlers-Danlos Support UK » The Village Directory

Ehlers-Danlos Support UK » The Village Directory

Ehlers-Danlos Support UK

Home Ehlers-Danlos Support UK PO Box 748 Borehamwood WD6 9HU Work Phone: Freephone Helpline number: 0800 907 8518 Website:


Another group close to the heart of the village.

What Is Ehlers-Danlos Syndrome?

Ehlers-Danlos syndrome (EDS) is an inherited condition that affects the connective tissues in the body. Connective tissue is responsible for supporting and structuring the skin, blood vessels, bones, and organs. It’s made up of cells, fibrous material, and a protein called collagen. Ehlers-Danlos syndrome is caused by a defect in collagen production. This condition is caused by a group of genetic disorders.

There are six major types of Ehlers-Danlos syndrome:

  • arthrochalasia
  • classic
  • dermatosparaxis
  • hypermobility
  • kyphoscoliosis
  • vascular

The area affected differs with each type of EDS. However, they all have one thing in common: hypermobility. Hypermobility is an unusually large range of movement in the joints.

The hypermobility and classic types of Ehlers-Danlos syndrome are the most common. The other types are rare, with the dermatosparaxis type affecting only about a dozen children on record worldwide. According to the National Library of Medicine’s Genetics Home Reference, EDS is seen in 1 in 5,000 people worldwide.


This is a directory of businesses, organisations and locally relevant individuals that are either based in Winterbourne Stoke, or are of interest to villagers and visitors to the area.  As a Parish Council, we believe in advertising the breadth of activities that go on in small, rural communities like our own; activities that have a diversity and global reach that might surprise many.

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